Bioethics: Standing Athwart Science, Yelling ‘Whoa’*
30th December 2015
Many years ago, I put my 23andMe genetic screening results online at SNPedia where they are regularly updated so that my friends and enemies can all find out what’s genetically wrong (and right) with me. Consequences? None.
So what is Skloot advocating that has gotten me riled up? The government is proposing revisions to the Protection of Human Subjects rule that could possibly impose new and extensive consent requirements for using all sorts of biological samples derived from people. Skloot begins by asking readers if they want researchers to continue the practice of freely passing around cells derived from their bodies and the genetic information they contain?
Knowledge is not property. Let me repeat that. Knowledge is not property. A fact about you is not something you own